I'm not doing a great job with the whole blogging thing.
I realize that you check in every morning first thing to see if I have posted one of my witty, thought provoking diatribes. Day after day you are disappointed in my lack of posting. You sit there wondering if perhaps I've given up on this whole thing, or possibly I've been abducted by aliens without internet access.
Truth is, like I said before... I've been busy. You think that exercise bike pedals itself?
Anyway, here's the latest....
Since we last spoke, our country has elected a new president. I'll keep my fingers crossed that he can come up with some way to get the economy, and the country in general I guess, turned around.
Zach is free of the MRSA bug. His surgery is scheduled for sometime in January. We could have done it in December, but we didn't want to go through the holidays with Zach just out of surgery. There's no telling how many holiday seasons that he will have, so it doesn't seem right to keep him from enjoying one if we can help it.
Zach has had more frequent episodes of what I guess you could call out of control shaking. It doesn't seem to be a seizure because he doesn't lose consciousness and will look at you - he just can't seem to stop shaking. There are times this seems to be triggered by him being frustrated about something - not being able to get up and walk, or not being able to communicate his needs to us. I wish we had some idea of how to help him when he has one of these episodes, but really all we can do is guess what he may want or need.
It's times like that where you are really hit with how much Hunter Syndrome damages the body. It becomes clear that the time we have for researchers to find a way for Elaprase to treat the central nervous system is getting shorter way faster than we would like.
Maybe one of the reasons I don't post often is because it forces me to contemplate the future - and I sure don't need THAT stress.
In other news, Josh turned 10 the day before Halloween. We had a party for him at TAG Gymnastics in Weston. It's pretty damn fun for both the kids and the adults. Your group pretty much has the run of the gym and all of the equipment for an hour. It's actually quite funny to see the adults cutting the kids in line so they can get a shot at the trampoline first. Janine and Liz (The director from Zach's school) took Zach for a turn on some of the equipment. Some of it he actually seemed to enjoy. Although he was beginning to look a little seasick after his turn on the trampoline.
As a side note to all of the parents that were there, I have numerous photos of you bouncing around on the equipment. If you don't buy a t-shirt or something from the store over there on the right, I'm going to publish them and subject you to a lifetime of public ridicule.
Oh, and for the mom who was wearing the skirt while bouncing on the trampoline... I've had offers from several websites for those photos.
Last Saturday marked the end of yet another baseball season for Josh. His team did well, finishing in second place for both the season standings and the playoffs. That's two more good sized trophies for the mantle. Of course he doesn't have a mantle to put them on because this is South Florida, and a fireplace is as common as a pet caribou. What he has is a dresser to put them on. Actually about half a dresser because he has a habit of piling his clothes on TOP of the dresser rather than IN the dresser. Either I need to get him to actually put the clothes away, or I need to buy him a bigger dresser.
Maybe I can get him to put the trophies in the dresser... I hadn't considered that until just now.
Brandon's birthday is rapidly approaching. We are going to have his party at TAG as well.
All moms who attend in a skirt are not required to bring a gift.
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