Never a dull moment...

Up until last night, the past week went fairly well for Zach.

He was eating fairly well, and seems to be adjusting to wearing his cast. He was back at school, and life has been getting back to its normal routine. (Well, normal for us at least.)

Then, just as we are getting settled to watch the SuperBowl, Zach started having what may (or may not) have been a seizure. He was shaking uncontrollably, hyperventilating, and his body temperature had shot up. After about 3 minutes we gave him a dose of Diastat per his neurologist's instructions, and called 911.

The friendly members of the Miramar Fire Rescue Department showed up within a few minutes and whisked away Zach and Janine to Memorial West. I followed a few minutes later.

By the time the ambulance arrived at the hospital, the shaking had pretty much stopped. We all spent the next 6-7 hours in the ER while trying to figure out if this actually was a seizure, if it was a seizure - what was the cause, was the Dilantin not working, why the remote control for the television I was watching would only allow you to cycle UP through the channels - even if you JUST WANTED TO GO BACK ONE DAMN STATION, and should his medication be changed?

Alas after a battery of tests, and much cursing at the remote on my part, we came away with not too damn much info. The neurologist wanted to switch his anti-seizure medicine, and we were sent off into the night (well, morning really) with prescription in hand.

We were in luck in that the nearest 24 pharmacy was only a couple of minutes away. Of course their computer system was down so they couldn't fill the prescription. Just our luck. Off we go to another pharmacy. When we get there we find out that Zach needs something like 120 cc of this medicine a month. However it is only dispensed in a 240 cc bottle. This doesn't seem like a big deal except for the fact that the insurance company won't pay for any more than a month at a time. Well, that and the medicine is about $200 a bottle without insurance. The pharmacist called the ER docs, but they basically said we were stuck because that was what the neurologist ordered and they couldn't change it... Now, realize this is all happening at about 2 in the morning. We decided that since Zach had been given a 12 hour dose in the hospital at about 12:30 that this could just get sorted out in the morning. (well, later in the morning)

As it stands, Janine was going to make some calls this morning to see what to do next. I haven't heard from her yet, so I assume nobody has been dumb enough to piss her off so far. Once she gets this medication thing taken care of, I'm going to have her try to find out why some moron would design a remote control that only allows you to switch the channels in one direction.