Just so everyone can put a face with the story, you can see Zach and the family featured in an episode of "Mystery Diagnosis" that was originally aired last year... Mystery Diagnosis .
Most of the scenes of Zach as a baby were actually filmed using his younger brother, Brandon. Even though Brandon does not have MPS, they still looked alot alike when Zach was Brandon's age.
Zach also has a mention in Newsweek magazine... Newsweek .
We're shooting for an episode of Oprah, but so far no luck.
In other news Josh and I have decided (okay, I decided he just agreed) that we should get a stationary bike to use for training for the race. I figure that once I bulid up a little stamina, and perhaps drop a few pounds that I can then progress to actually jogging.
Josh, who thinks it's fun to jog around the block while jumping rope AT THE SAME TIME, is apparently not worried about his own stamina. However he is a bit concerned about the prospect of having to carry me. He has floated the idea of bringing a wagon that I could sit in and be pulled just in case.
I'll have to think about that one.
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I watched your show with Zach on Monday night. I don't have a lot of time to read your blog, but I hope you are doing well.
(Great-grandma Esther Goldstein reminded me of my grandma Jenny Cohen.)
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