After meeting with Zach's ortho, Dr. Michael Jofe yesterday, we have decided to go ahead with spinal surgery for Zach.
Although it isn't typical for Hunter's patients, Zach has a severe kyphosis in his spine, and since it is progressing, there is a chance it could put pressure on his spinal cord. By placing rods along his spine, the surgeon is optimistic that this can be prevented.
There have been a few differing opinions on the need to have the surgery at this point among the different Drs. treating Zach. We thought about it hard, did our reasearch and came to the conclusion that this was the correct decision.
When you have a child with a severe medical condition you are often faced with these decisions, and they're really hard to make. Perhaps once I get "never promised tomorrow" off the ground helping parents facing these decisions can be one of the things I do.
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